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Rare disease patient engagement consultant Patient advocate Public speaker Published autho

Consultant ★ Speaker ★ Advocate

Taylor is a solution-driven patient advocacy consultant with over ten years of experience in championing the needs of the rare disease community and serving as an intermediary between patients, researchers, and industry. She is uniquely situated to develop patient-centric strategies and initiatives for both internal and external advocacy relations, and maintains strong relationships with a vast global network of patient leaders and industry professionals. Taylor works with both for-profit and nonprofit organizations in the United States and Europe, with a focus on helping drug developers, genomics companies, and research organizations connect most effectively with the patient communities they seek to serve.

Consulting Services

  • Developing patient engagement and outreach strategies

  • Collecting and systematizing patient feedback

  • Communicating with stakeholders

  • Amplifying brand public relations

  • Maintaining relationships with patient community

  • Leading creation of patient-focused content

  • Fostering strategic engagement

  • Growing sustainable organizations

Honors

  • Amplifier Award - Hemophilia Federation of America (Apr 2022)

  • 20 Rare Disease Champions to Know - Global Shakers (February 2020)

  • Undergraduate Prize For Feminist Scholarship - The George Washington University Women's, Gender, and Sexuality Studies Program (May 2019)

  • Rare Voice Award (Teen Advocacy/State) - Rare Disease Legislative Advocates (November 2017)

  • RARE Champion of Hope (Teen Advocacy) - Global Genes (September 2017)

  • Volunteer of the Year - Kennedy Krieger Institute (May 2017)

  • Hero of the Year - National Association of Women Business Owners-South Jersey Division (February 2017)

  • Community Contribution Award - Educational Research Center of America (October 2016)

  • Young Women in Public Affairs Award - Zonta International/Trenton NJ Division (April 2015)

  • New Jersey State Governor’s Jefferson Award for Public Service,Youth In Service - Jefferson Awards (June 2014)

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